The following post is an exceptionally detailed review of the evidence, and scientific consensus, specific to the persistent claim of a link between vaccination and autism.
Those familiar with the integrity of the scientific method and its value in examining this particular issue will be grateful for both the quality and extent of this review.
Use of the seven tiered Hierarchy of Scientific Evidence provides an excellent device by which to gauge the value of evidence, and as such, introduces one to a reliable tool for similar endeavours.
One of the most common concerns that people have about vaccines is that they might cause (or exacerbate) autism. This idea is perpetuated by celebrities and innumerable websites, and it has become one of the cornerstone arguments of the anti-vaccine movement, but is there any truth to it? Perhaps unsurprisingly, both sides claim a superiority of evidence. Indeed, you can find numerous websites presenting lists of papers that they claim provide evidence that autism is caused by vaccines (such as “124 research papers supporting the vaccine/autism link“). Conversely, those who support vaccines also have lists of papers which they present as evidence that vaccines do not cause autism (for example, here and here). So which is correct? The internet is full of misinformation on this topic, so I want to cut through that crap and talk about the actual studies themselves rather than simply tossing lists around…
A casual review of anti-vaccine submissions pertaining to the Social Services Legislation Amendment (No Jab, No Pay) Bill 2015, reveals a striking repetition of unsubstantiated or demonstrably false claims, mixed with more of the misguided beliefs that have brought Australia to this point in the first place.
The most prominent theme backed by deceptive pseudoscience or distortion of genuine science is that vaccines are harmful. More so they are either not needed due to the wonders of modern snake oil or have never had the dramatic impact on the scourge of vaccine preventable diseases, that they have indeed irrefutably had. Vaccines are however, capable of causing the diseases the public is deceived into believing they prevent, and go on to enable their spread.
A while back I touched on the triumphant antivaccinationist claim of “having done my research”. I suggested a lack of critical thinking and cognitive bias left a great deal of these “researchers” incapable of discerning reputable source material from nonsense. That the unwary reader is presented with huge volumes of championed material, yet lacks the rather vital tools of cognition to identify and trust the genuine expert. This is a fast track to accepting opinion (or worse) as fact.
Tim Harding tackles this problem in more depth and with far more care than I, in his article How Dr Google spawned a new breed of health ‘experts’. Harding identifies key elements contributing to this phenomenon. Under the heading Misunderstanding democracy, he writes;
Reducing the influence of experts is sometimes mistakenly described as “the democratisation of ideas”. Democracy is a system of government — it is not an equality of opinions.
While the right of free speech prevents governments from suppressing opinions, it does not require citizens to treat all opinions equally or even take them into account. Equal rights do not result in equal knowledge and skills.
[…]
Deakin University philosopher Dr Patrick Stokes has argued the problem with “I’m entitled to my opinion” is that it has become shorthand for “I can say or think whatever I like” without justification; and that disagreement is somehow disrespectful.
Dr Stokes suggests that this attitude feeds into the false equivalence between experts and non-experts that is an increasingly pernicious feature of our public discourse.
The truth and import of Dr. Stokes’ observation of false equivalence between experts and non-experts is a reality I feel we should readily accept. Skeptics and science advocates have experienced and will continue to experience such when it comes to the anti-vaccination lobby.
In recent weeks this lobby has accused its critics of being worse than Nazis. They have launched a concerted attack against the families and grieving parents of infants lost to pertussis. They have produced memes likening vaccination to rape – and defended criticism of this. Whilst less insulting but no less ludicrous they’ve insisted democracy in Australia is dead.
Yet they never doubted their democratic right to swamp the No Jab, No Pay Social Services Amendment process with submissions accommodating a host of patently ridiculous, fallacious and time wasting material.
Some don’t know they are parroting nonsense. Meryl Dorey’s old trick attacking pertussis vaccine efficacy pops up here and there. 1991 was the first year for compulsory notification of pertussis cases, which were recorded by the National Notifiable Surveillance Diseases System. 1991 was a different time. Not all health professionals were logistically prepared to diagnose, much less report pertussis cases. Sensitivity of diagnostic equipment was magnitudes less than today. This was five years prior to the Immunise Australia campaign, launched by Michael Wooldridge.
So the deception runs that in 1991 with only around 71% of 0-6 year olds vaccinated, there were only (according to one submission) 347 cases. In fact there were only that many cases reported. NNSDS pertussis figures for 1991 still creep up at about five per year. 1991 notifications in 2012 are 332. This year to date: 345. The same submission goes on to report that in 2011 with a 95% pertussis vaccine uptake in 0-6 year olds, “there were 38,725 cases of whooping cough”.
Notice the age of vaccination is the 0-6 years cohort, but the pertussis notification figure is Australia wide. This includes overseas visitors, workers and new arrivals who brought the infection with them.
And of course by 2011 it’s not that PCR testing can detect Bordetella pertussis in samples hundreds or thousands of times smaller. And days older. Or that practitioners are constantly on the lookout for signs, or that documentation of notification is meticulous. Or sciencing in this field is better and faster.
Or that it is therefore significant that last year’s total of 11,866 (approx. 700 more than 2005) is comparatively low, and the high figures collated for 2009 – 2011 reflect the national outbreak that is reported as beginning in Meryl Dorey’s backyard. NB: article uses a number of media sources.
Nay. It’s the vaccine whatdunnit, dear reader, and Meryl Dorey has been peddling that lie and tripping up people who “do their research” for years. She never has replied to my January 2012 email wherein I step by step showed her how she pulled off this trick.
Vaccines it is argued, still cause autism. One may read that “autism-like symptoms” are in fact autism. That the US Vaccine Injury Compensation Program has compensated cases of autism arising from vaccination. This is most certainly untrue. The VICP continue to deny ever having compensated any individual for autism caused by vaccination.
Whilst terms such as “autism-like symptoms” are used the Compensation Program at no time refers to anything like “autism arising from vaccination” or “autism as a result of vaccination”. The Pace Law School scandal is deconstructed here. Meryl Dorey’s fraudulent addition of the word “[Autism]” to the US Court of Federal Claims case file dealing with the case of Bailey Banks is documented here. Sadly it is not realistic to think these claims have not influenced opinion in some.
Across the internet the false tale of 83 vaccine induced autism cases, compensated by the US Vaccine Injury Compensation Program will pop up. It refers to a paper written by Pace Law School Students entitled, Unanswered Questions from the Vaccine Injury Compensation Program: A review of compensated cases of vaccine induced brain injury.
Reading the document reveals ample use of terms such as “settled cases suggesting autism”, “language that strongly suggests autistic features”, “published decisions that used terms related to autism”, “payment of vaccine injured children with autism”, and not – as Seth Mnookin pointed out – “because of their autism”. More so, the authors spend some time arguing why there should be no distinction between autism and autism-like symptoms. This is a major concession they award themselves.
The paper includes caregiver opinion, parental opinion, phrases from doctors who gave evidence at hearings and provides a case table of “Language suggesting autism or autistic-like symptoms”. A notable concern is referencing The Age of Autism: Mercury, Medicine and a Manmade Epidemic [2010] by Dan Olmsted and Mark Blaxill.
This issue of insisting “autism-like symptoms” should be accepted as autism may have an intuitive feel to it but would ultimately reap an injustice on individuals involved. If we consider patients who have experienced brain injury from head trauma, stroke, near drowning or drug overdose, each may present with near identical symptoms. However the mechanism of brain injury is different and demands specificity of treatment.
So it is with autism. Diagnosis, treatment and prognosis are not opinions one can choose. Other erroneous opinions we find as a result of anti-vaccine research lean towards the legislative change being an abuse of rights and freedoms. It is an abuse of our constitution. Vaccines, being poisonous and responsible for chronic disease in children will reap harm because natural is best whilst chemicals and toxins are bad.
In fact the submissions rejecting No Jab, No Pay appear to be a cornucopia of all anti-vaccine misinformation. The authors have indeed “done their research”.
There are many reasons anti-vaccine lobbyists push the falsehood that herd immunity “is a myth”, is not important or simply doesn’t exist.
To listen to recent untruths from Meryl Dorey, one should eagerly accept that it is “documented” in peer reviewed literature as being more or less non-existent. Indeed, “it is a lie” lies Dorey. By essentially mocking the importance of herd immunity, garden variety anti-vaccine tricksters can shirk the responsibility that not vaccinating may harm the wider community, innocent infants or children, and deny larger scale resistance to infection that the immune-compromised rely on.
Herd immunity is an impressive function of mass vaccination. More so it is remarkably easy to understand. But the anti-vaccine lobby refuse to accept any need for or benefit from, mass vaccination. It is even more bizarre when one considers the parallels to so-called “natural immunity” – such as with marvellous measles, or “right of passage” infection and immunity. With mass vaccination we can control the spread of immunity and thus the spread and ultimate impact of vaccine preventable disease.
We should never forget that claims of raising impeccably healthy and disease-free unvaccinated children can exist only for as long as vaccine-induced herd immunity remains at a crucial level. The level that permits a free ride and protection from most vaccine preventable diseases for these very children.
Once again the formula frequently relied upon is “< 100% = 0%” – such as this 1973 article. One popular mode is that if a child is vaccinated against X, they should be safe from infection with X. Even worse is a distortion of epidemiological factors at play. This involves citing nationwide or statewide vaccination rates – which level out as reasonably high – along with reported outbreaks, such as those seen of pertussis or measles. Or including individuals who have had just one MMR jab (in the case of measles) or those whose vaccine-induced pertussis immunity has certainly waned.
This not-very-clever deception ignores the fact that areas with low vaccination uptake provide the ideal conditions for infection to spread rapidly.
The video below compares the difference in infection spread in the sparsely located unvaccinated compared to a cluster of unvaccinated individuals.
More than a week after the Australian Vaccination-skeptics Network posted an appalling Facebook meme likening vaccination to “forced penetration” rape, they are yet to apologise.
Rather, the group’s administrators have hidden behind a myth that the Facebook page is not owned by them, thus is out of their control. As noted below archaic definitions of the word rape have been offered to justify the insult, whilst trolls belonging to the cult have taken aggressive campaigning further via social media.
Why do the page owners continue this charade? Because the Facebook page is entitled “Australian Vaccination Network” – the groups old and deceptively official sounding name. The cult was ordered by NSW Department of Fair Trading (Fair Trading) to change it’s name to reflect (ABC) the utter and absolute anti-vaccination stance, activities and advice the group is known for.
We believe that the Administrative Decision Tribunal, in finding against the AVN, exemplified the current climate of government-sanctioned abuse and hatred of anyone who steps away from mainstream medical dogma.
Ah yes. “Abuse and hatred”. Need one elaborate?
Back to the Facebook page charade. A visit to their website shows the title as it is hyperlinked above – with a hyphen and lower case “s” for skeptic. In red font we read “Formally known as Australian Vaccination Network Inc”. The lie that the Facebook page is “owned” by someone else in another country is just sour grapes so that the group can cling to a sense of rebellion and in fact ignore in part, the Dept. of Fair Trading ruling.
This point is underscored by a Facebook comment from Meryl Dorey posting as her alter ego “B52” just five days ago.
“There is no AVSN – that is what the media incorrectly calls the AVN. Please don’t play into their hands”. And this is a page for fans of the AVN”. […]
Oh my. My, my, my. Yet the NSW Department of Fair Trading begs to differ. And the ADT plainly found against the AVsN appeal. The final paragraph of the announcement from Fair Trading reflects the very nature of this sham organisation and the deception that sustains it. The minister for Fair Trading at that time, Anthony Roberts observed:
We are asking the Australian Vaccination Network to be honest and upfront about what they stand for and to choose a new name reflecting their beliefs.
Today as the Australian Vaccination-skeptics Network they are still dishonest and misleading about what they stand for, and appear unable to accept their name change or act in accordance with regulation.
The owner of the Australian Vaccination Skeptics Network Facebook page, Meryl Dorey, has for the second time in her running of the groups page published a post likening immunisation to rape. The first post of this nature was on January 15, 2011 in response to a court ordering a mother to have her 5 year old daughter vaccinated. Dorey wrote, “Court orders rape of a child. Think this is an exaggeration? This is assault without consent and full penetration too…”. The result was an immediate loss of members followed by a puerile insistence by Dorey that some archaic definitions that list “plunder, despoil, seize and carry off by force” as types of rape justify her comment. This time again disgusted page members rose in large number to condemn such an affront to reason with at least one member publicly announcing she would be quitting Dorey’s page immediately. Once the media got hold of the story the post was deleted, and childish lies claiming innocence began to surface – to great amusement on social media.
Dorey has reacted again, by predictably presenting her “dictionary” to insist rape is merely general medieval abuse – despite the image she used of a man attacking a woman from behind with the words, “Forced Penetration. Really it’s no big deal if it’s just a vaccination needle and he’s a doctor – do you really need control over your own choices?” Incredibly, AVSN group leader Meryl Dorey, and Tasha David the current so-called “president” insist their page does not belong to the group – even though they hold administration privileges. They pleaded innocence, further demolishing their credibility by insisting they have “no control” over what appears on the page – albeit content contains their signatures. Australian Doctor reported on the public statement posted on the groups Facebook page with input from Meryl Dorey pushing the evidence-free myth that vaccines kill large numbers of children.
Australian Doctor attempted to contact the AVSN by phone, however the number listed for the organisation on its webpage was disconnected. The group — based in Bangalow on the NSW north coast and formerly known as the Australian Vaccination Network — made a public statement over Facebook disowning any relationship between the AVSN Facebook page and the actual organisation. It admitted the image posted was in poor taste but also queried why there was such great media interest in the meme when they apparently ignored “children who are killed”. AVSN spokeswoman Meryl Dorey said: “I agree that the image was very much in-your-face and should not have been posted here, but I am also (once again) floored that this has become a media issue whilst the children who are killed and permanently injured, and their families that are often destroyed, remain in the shadows as far as the press is concerned. “Let’s get back to the issue at hand and agree that the important thing to do is to focus on the immorality of forced vaccination.”
~ Superfood is a marketing term used to describe foods with supposed health benefits ~
The growing uptake of truly ridiculous (and frankly quite dangerous) super food trends continues apace with much thanks to the internet and increasingly, social media.
Far from a byproduct of the “information super-highway”, the pseudoscience, deception and planned scamming that can be seen today is better considered a byproduct of a wild roller coaster ride through The Twilight Zone.
The humble blueberry is a so-called “superfood”. Nutritional information may be found here. The Wikipedia entry on superfoodsnotes thatBlueberries [are] a so-called “superfood” that actually does not have an unusually dense nutrient content. These berries contain anthocyanin which is a flavinoid with antioxidant capability. Along with the semantics of “wellness” there are many similar miracles supposed to control toxins. It is best to ignore this marketing niche at all costs. Sometimes expensive costs.
Imagine a plant that can nourish your body by providing most of the protein you need to live, help prevent the annoying sniffling and sneezing of allergies, reinforce your immune system, help you control high blood pressure and cholesterol, and help protect you from cancer. Does such a “super food” exist?
Yes. It’s called spirulina.
Unlike plants you may grow in your garden, this “miracle” plant is a form of blue-green algae that springs from warm, fresh water bodies.
The “wellness” push for foods that are supposed to be “super” and as such capable of proactive, reactive (or both) types of veritable nutritional magic is consonant with similar and supporting health beliefs and movements. The anti-vaccine movement spends a great deal of time in the superfood/antioxidant driving gear. Uncertain parents are led to believe that vaccines contain untested “poisons… toxins… chemicals” and thus can certainly harm.
The answer – albeit monumentally wrong – is to avoid vaccines and instead pursue all things natural. So too it is with illness and alarmingly, cancer. The author of The View From The Hills, Rosalie Hillman stepped up to the plate and asked some vital questions of a young lady, Jessica Ainscough. It is astonishing Jessica’s claims were going unchallenged. Rather than being challenged for promoting the impossible, she was virtually worshipped as the head of her own “tribe”. Ainscough was being presented as having (and who was basically claiming to have) cured cancer through diet, the well known alternative pseudoscientific and thoroughly discredited Gerson Therapy and positive thinking.
With its whole-body approach to healing, the Gerson Therapy naturally reactivates your body’s magnificent ability to heal itself – with no damaging side effects. This a powerful, natural treatment boosts the body’s own immune system to heal cancer, arthritis, heart disease, allergies, and many other degenerative diseases. Dr. Max Gerson developed the Gerson Therapy in the 1930s, initially as a treatment for his own debilitating migraines, and eventually as a treatment for degenerative diseases such as skin tuberculosis, diabetes and, most famously, cancer.
Basically Gerson approach concludes we are bombarded with toxins and carcinogens over our lifetime. Gerson plays the magic Ace card in claiming to “restore the body’s ability to heal itself”. This message is pushed hard. The body can heal itself. It is this amazing ability we have lost and which apparently demands kilograms of fresh fruit and vegetables daily in conjunction with the thrice daily enemas. The infamous coffee enemas ensure toxins will be eliminated from the liver.
Jessica Ainscough passed away from epithelioid sarcoma on February 26th 2015. Her cancer progressed as evidence based medicine would suggest for a woman of her age diagnosed when she was in 2008. Tragically Jessica’s mother, Sharyn, chose to follow Gerson Therapy in an attempt to defeat breast cancer. This meant abandoning radiotherapy.
Addressing both cases the ABC wrote:
Despite Cancer Council advice that Gerson Therapy was not proven to work, Ms Ainscough persisted, embarking on an alcohol-free vegan diet, drinking raw juices, taking vitamin supplements and undergoing coffee enemas daily.
She made videos explaining how to administer enemas and posted them on YouTube, although that video is now marked private.
When Ms Ainscough’s mother, Sharyn, was diagnosed with breast cancer, she followed her daughter’s lead and put her faith in Gerson Therapy.
Sharyn died in October 2014.
Whilst there are many heartless scam artists, such as Hellfried Sartori, aka “Dr. Death” and those genuinely deluded by their beliefs, one person deserves special mention. It appears that Belle Gibson managed to sink as far as one Meryl Dorey in that pleas for money donations from the public accompanied promises donations would be passed to charity. Gibson had named charitable organisations. As with Dorey this was not the case, although now under the glare of media scrutiny she has indicated the promised donations will be paid.
Gibsons The Whole Pantry app made the grade as a permanent app for the Apple Watch. It now seems Apple have pulled the app from Australian and USA app stores, but it is unclear if it will be and it has also been removed from promotional material as a permanent app from the much anticipated Apple Watch and iPad Air 2.
As Jenny McCartney recently noted the urge to believe in the magic of change turns consumer gullibility into fertile ground for the absurd claims made by every type of entrepreneur from well meaning fools to cunning scam artists. Gibson is reportedly back in Australia, but seriously who cares?
The damage has been done. Research indicates that even with brutally thorough exposure and follow up high quality debunking of anti-medicine and anti-science lies, the misinformation sticks. In this case it is not the lie of vaccines causing autism. Yet sadly it is a louder echo of a trumpet the antivaccinationists love to blow. Primarily that surgery, radiotherapy and chemotherapy do little for successful treatment of cancer.
The scale of Gibson’s rort is truly frightening. How many will follow her manufactured rubbish is unknown. But the fact remains that her army of followers and supporters will continue to support her pantry nonsense. Certainly many will realise the scam, but others – particularly the hard core anti-medicine crew – will dig in and find comfort in the usual conspiracies.
Consumers must develop skills in recognising reputable sources. As with the misinformation relating to vaccination and vaccines. Doing “research” just doesn’t cut it. Far better to have the means by which we can identify good, trustworthy material and spot the signs that give away trickery that is simply too good to be true. With cancer time is vital and whilst eating well is in itself not harmful, time spent thinking it is “treatment” is time lost from actual proven treatments.
This handbook from The Cancer Council provides excellent advice and tips on identifying dodgy sources and outright scams. As mentioned in the last post consider, “How will I know if claims of a cure are false?”. On page 39 of this booklet they note that the dishonest and unethical may;
Try to convince you your cancer has been caused by a poor diet or stress: they will claim they can treat you or cure your cancer with a special diet
Promise a cure – or to detoxify, purify or revitalise your body. There will be quick dramatic and wonderful results – a miracle cure
Use untrustworthy claims to back up their results rather than scientific-based evidence from clinical trials. They may even list references. But if you look deeper these references may be false, nonexistent, irrelevant, based on poorly designed research and out of date
Warn you that medical professionals are hiding “the real cure for cancer” and not to trust your doctor
Display credentials not recognised by reputable scientists and health professionals
Always speak to your doctor and be aware that even the best intentions of friends can unwittingly disarm you through peer pressure. There is no cure for cancer, but there are excellent treatments.
Avoid food fads as a means to health and beware of the wellness trend.
UPDATE – April 2nd, 2015. Belle Gibson will not be facing police action over fraud. Consumer Affairs Victoria has noted that dishonest and misleading actions of the business, The Whole Pantry, “may constitute a breach of the Fundraising Act 1998 or Australian Consumer Law (Victoria)”. Presently CAV are “ascertaining the facts around Gibson and her companies collection of funds and promises of donations.